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Disty Pearson
Retired but working to improve life long care for those with childhood onset heart disease
Disty Pearson is the Vice President of Global ARCH (Alliance of Rheumatic and Congenital Hearts), where she plays a significant role in advocating for individuals affected by congenital heart disease (CHD). She is a retired physician assistant with over 40 years of experience in the field, particularly focusing on adult congenital heart disease. Pearson has worked extensively with CHD patients, including a notable tenure at the Boston Adult Congenital Heart Service (BACH) at Boston Children's Hospital and Mass General Brigham for the last two decades of her career.13
As a parent of a child with congenital heart disease, Pearson brings a personal perspective to her work, emphasizing the importance of incorporating patient and family voices into healthcare decisions. Her dedication is reflected in her involvement as a founding member of the American College of Cardiology's Medical Advisory Board for the Adult Congenital Heart Association (ACHA) and her commitment to improving lifelong care for those affected by childhood-onset heart disease globally.12
Through her leadership at Global ARCH, Pearson aims to enhance care access and equity for patients with congenital and rheumatic heart diseases, fostering collaboration among healthcare providers and patient advocates.1